The death of Peter Frampton, to quote Mark Twain, has been grossly overstated. Naturally, it could be because the Grammy-winning musician decided to call it quits after being diagnosed with Inclusion Body Myositis (IBM), a progressive muscle disorder characterized by inflammation, weakness, and atrophy, and embarking on a 2019 string of dates dubbed Peter Frampton Finale—The Farewell Tour.
Peter Frampton Illness Myositis
In 2019, Mr. Frampton made public his diagnosis of inclusion body myositis (IBM), one of a group of uncommon muscle illnesses that may lead to profound impairment if left untreated. Others with myositis are being encouraged by his can-do attitude to live their best lives despite their conditions.
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Mr. Frampton is also utilizing his fame to collect money for myositis research, which is desperately needed. While receiving care at Johns Hopkins, he launched the Peter Frampton Myositis Research Fund. The 2019 Farewell Tour raised money for the foundation by donating $1 from each ticket and 100% of T-shirt sales.
The Myositis Association is grateful to Mr. Frampton for being so open about his experience with this debilitating condition and for spreading his message of hope and inspiration to others. Many people with myositis have expressed gratitude for his video lectures at TMA conferences and fundraising events, in which he has delivered inspirational messages directly to individuals who suffer from the condition.
“Peter Frampton gives inspiration and hope to the thousands of myositis patients across the country,” says John McClun, past head of TMA’s Board of Directors and an IBM patient himself. “His message, ‘It’s not life-threatening, it’s life-changing,’ is a most powerful antidote to the fear and loss experienced by those who live with this disabling condition that has no treatment and no cure.”
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While there is currently no cure for IBM, tremendous progress is being made in the field. Researchers are actively seeking participants for many research studies in search of a cure. Mr. Frampton’s efforts to raise awareness at this critical juncture are much appreciated. This year, Mr. Frampton will receive his award in person at the TMA Annual Patient Conference in San Diego, California, on September 7-10.
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